Nel corso dell’evento è stata dedicata particolare attenzione alla ricerca scientifica sulla patologia e alle recenti innovazioni terapeutiche
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- News from HAEi countries around the globe
- hae day 🙂 2024 – you’ve been more #Active4HAE than ever before!
- They walked the walk! Catching up with HAE Serbia
- 100 Member Countries strong
- Elevating advocacy efforts through regional understanding – an overview of our Regional Advisory Groups and Regional Medical Advisory Panels
- Update from the HAE Youngsters’ Community
- Access all areas – insights from Member Organizations on gaining access to medicines
- The power of the law – to help your advocacy efforts
- All about ACARE
- How vital you are to HAE research
- HAEi FocalPoint: The ‘one-stop’ tool for Member Organizations
- and much, much more …